Welcome family and friends and those seeking information on Dandy-Walker Syndrome. This is our beautiful son Nicholas...
Thursday, November 4, 2010
Surgery,18 months, Halloween and Strawberries
Nicholas had been sick on and off since July. He would be up in the middle of the night screaming, crying and vomiting. He exhausted himself to sleep hours later. The doctors never could find out what was wrong with him. I finally talked his shunt surgeon into giving him a ct scan. They called after his scan and said his head looked great. The pump was working. We had a follow up a few days later for the shunt surgeon to see him. She showed me the ct scan and everything did look great. I told her I was sorry to keep bothering her office but the pediatrician couldn't find anything wrong and I didn't know where to go. Something had changed since July. I told her I had sent her assistant an e-mail photo of the back of Nicks neck. It looked more swollen at times.Was this due to his crying, screaming and throwing up, or he had grown... was this how it was supposed to look. she felt his neck, got up and looked at her computer again. She zoomed in on the shunt and said the shunt has come out of his head and is now in his neck. It was still pumping and clearing his head of extra fluid but he could at times be blocking the shunt causing him possible migraine. He had surgery a few days later to put the shunt back in his head and now he is better than ever!
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2 comments:
Oh thank goodness they finally pinpointed the problem and things are back on track! Nicholas is looking fab and really enjoying those strawberries!!
Jennifer xx
Hi!
I am myself a mother to a litle one year old girl with Dandy-walker. I've been reading your blog, and are waiting for an update:-) I'm hopeing you and Nicholas is doing great!
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